Resources
AUTISM
A comprehensive resource, support, and community outreach site for families of children with autism: https://www.autismspeaks.org/
AUTISM SOCIETY OF SOUTH CAROLINA
BABYNET OF SOUTH CAROLINA
BabyNet is South Carolina’s interagency early intervention system for infants and toddlers under three years of age with developmental delays, or who have conditions associated with developmental delays.
https://www.scdhhs.gov/resources/programs-and-initiatives/babynet
Cerebral Palsy (CP) informational guide regarding diagnosis, types of CP, treatment options, community resources, legal resources: cerebralpalsyguide.com
HTTPS://WWW.SCDHHS.GOV/RESOURCE/BABYNETCEREBRAL PALSY
CLEFT LIP/PALATE
Defines the types of cleft lip and palate, feeding protocols, and care & treatment plans from the cleft/craniofacial specialists: Information at Healthy Children.org
DOWN SYNDROME ASSOCIATION OF SOUTH CAROLINA
This is the local chapter of the National Down Syndrome Association and provides a wealth of resources for parents, including New Parent Resources, local support networks, available grant and scholarship funding, and much more: https://www.globaldownsyndrome.org/about-down-syndrome/resources/local-organizations/south-carolina-down-syndrome-organizations/
PLAGIOCEPHALY & TORTICOLLIS
Provided by American Academy of Pediatrics: Information at Healthy Children.org
INFANT FAILURE TO THRIVE
Provided by American Academy of Pediatrics: Information at Healthy Children.org
PREMATURE INFANTS
Importance of Early Intervention Services following discharge from the NICU: Information from March of Dimes
IMPORTANCE OF TUMMY TIME FOR INFANTS
Two excellent resources explaining the importance of tummy time for a baby’s development:
American Occupational Therapy Association Resource
A GUIDE TO MEDICAID WAIVER PROGRAMS IN SOUTH CAROLINA
https://msp.scdhhs.gov/hcbs/site-page/medicaid-waiver-information
PARENT TO PARENT OF SOUTH CAROLINA
Our parent to parent support program consists of trained parent volunteers who provide emotional support and information to families based on the child’s disability or special healthcare concern: https://www.familyconnectionsc.org/parent-to-parent/